April 18, 2013

Conner’s Care ~ Helping a Local Family in Need

Posted in Uncategorized at 2:37 pm by DivineShantiYoga

Conner’s Care Fundraiser

Let’s all help to make a difference in this angel’s life!

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Conner was born July 5th, 2010 with a rare bone disorder called Osteogenesis Imperfecta, OI for short and more commonly referred to as Brittle Bone Disease.

Conner is one of five children for Kip and Denise, he is also a twin! Conner’s twin sister does not have OI, as this disease is a mutation in their family. They were told Conner had OI in utero, as his limbs were much shorter than they should be and he was showing fractures and bowing of his bones.

Conner has a severe type of OI which is type III, he has had over 60+ broken bones in his short  2 1/2 years of life. Conner’s bones were compared to paper when he was born adn they had to carry him around on a pillow because he was so fragile. Although there is NO cure for OI, Conner recieves infusions of pamidronate every 6 weeks over a two day period to help make his bones more dense and help with pain.

Conner has had bilateral femur and tibia rodding surgery along with both of his humerous to help with the bowing of the limbs and to be an internal splint. He has had multiple surgeries and will continue to do so throughout his lifetime. Conner also has brittle teeth, he has had several teeth that have chipped and he will need to have all his teeth capped once they start to show wear.

Conner’s family travels from Charlotte, NC to Omaha, NE for this surgeries and clinic to see experts on OI.

His family will continue to have ongoing medical and travel expenses. He will also need to have his home modified to fit his needs.

We appreciate your support and taking the time to learn more about Conner.

Donate Now (Click Here)

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